Sharing of data originating from state and territory births and deaths registrars, and Australian Government agencies to support creation of the NDDA
DSR-02467
In Effect
Project title
Sharing of data originating from state and territory births and deaths registrars (coordinated by the Australian Coordinating Registry), the National Disability Insurance Agency, the Department of Health and Aged Care, the Department of Social Services, Services Australia, and the Australian Bureau of Statistics to support creation of the National Disability Data Asset
Agreement date
Registration date
Data sharing purposes
Informing government policy and programs
Research and development
Research and development
Data Custodian
Australian Bureau of Statistics
Data requestor
Australian Bureau of Statistics
Australian Institute of Health and Welfare
Australian Institute of Health and Welfare
Accredited Data Service Providers
Description and public interest statement
The National Disability Data Asset (NDDA) will bring together de-identified data from Australian, state and territory government agencies for research and analysis.
The Australian Bureau of Statistics (ABS) and the Australian Institute of Health and Welfare (AIHW) are partnering to design, develop, and deliver the technical aspects of the NDDA. The NDDA project is being led by the Australian Government Department of Social Services (DSS) and is overseen by the Disability Reform Ministerial Council (DRMC).
Public Interest Statement
The NDDA will help people with disability, family members and carers; organisations that service people with disability; researchers; and governments:
• access better information;
• use, design, and deliver better support, services and information; and
• collaborate to improve outcomes for people with disability.
Each of the specified data below is already shared with the ABS for the Personal Level Integrated Data Asset (PLIDA). Through the PLIDA, the data is transformed and split into de-identified modules of analytical data. Under this agreement, de-identified and transformed PLIDA modules of analytical data will be shared into the DATA Scheme to create the NDDA.
The Australian Bureau of Statistics (ABS) and the Australian Institute of Health and Welfare (AIHW) are partnering to design, develop, and deliver the technical aspects of the NDDA. The NDDA project is being led by the Australian Government Department of Social Services (DSS) and is overseen by the Disability Reform Ministerial Council (DRMC).
Public Interest Statement
The NDDA will help people with disability, family members and carers; organisations that service people with disability; researchers; and governments:
• access better information;
• use, design, and deliver better support, services and information; and
• collaborate to improve outcomes for people with disability.
Each of the specified data below is already shared with the ABS for the Personal Level Integrated Data Asset (PLIDA). Through the PLIDA, the data is transformed and split into de-identified modules of analytical data. Under this agreement, de-identified and transformed PLIDA modules of analytical data will be shared into the DATA Scheme to create the NDDA.
Description of shared data
Australians deaths data
The Australian deaths data contains records of all deaths registered in Australia since 1980, as reported by the Registrars of Births, Deaths and Marriages in each state and territory. The Australian deaths data contains information including date of death and age at death.
Data provider: The Queensland Registry of Births, Deaths and Marriages in its capacity as the Australian Co-ordinating Registry
Data provider: The Queensland Registry of Births, Deaths and Marriages in its capacity as the Australian Co-ordinating Registry
Sensitivities
- No
Medicare Benefits Schedule data
The Medicare Benefits Schedule data collection contains information on services that qualify for a benefit under the Health Insurance Act 1973 and for which a claim has been processed. The data comprises information about claims (including benefits paid), patients and service providers.
Data Provider: Department of Health and Aged Care
Data Provider: Department of Health and Aged Care
Sensitivities
- No
Pharmaceutical Benefits Scheme data
The Pharmaceutical Benefits Scheme data collection contains information on prescription medicines that qualify for a benefit under the National Health Act 1953 and for which a claim has been processed. The database comprises information about scripts and payments, patients, prescribers and dispensing pharmacies.
Data provider: Department of Health and Aged Care
Data provider: Department of Health and Aged Care
Sensitivities
- No
National Disability Insurance Scheme data
The National Disability Insurance Scheme (NDIS) data contains records about Australian people who are or were NDIS participants and those who have enquired or applied to the NDIS. It includes information about Australian people including their disability; their access requests to the NDIS; their plans, Government-funded supports and payments; their carers; and their outcomes from being a part of the Scheme.
Data provider: National Disability Insurance Agency
Data provider: National Disability Insurance Agency
Sensitivities
- No
Core NDDA Content data (DOMINO)
The Data Over Multiple Individual Occurrences (DOMINO) data contains de-identified information about persons accessing a Centrelink administrated payment or service.
Data provider: Department of Social Services
Data provider: Department of Social Services
Sensitivities
- No
Dual Use Variables (MCD & DOMINO)
This data contains de-identified unit record analysis files produced using variables that are consistent across linkage and content data files. Examples of these dual use variables may be sex and age, both of which are required for linkage purposes but also to produce analysis.
Sensitivities
- No
Subset(s) of the National Linkage Map
The National Linkage Map is a concordance of de-identified person identifiers that provides pointers to records of an individual across different datasets. It facilitates the bringing together, on a de-identified basis, analytical data for the NDDA.
Sensitivities
- No
Survey of Disability, Ageing and Carers data
The Survey of Disability, Ageing and Carers data includes information about people with disability, older people (aged 65 years or more) and people who care for people with disability or older people.
Sensitivities
- No
Legislation overridden
-
Health Insurance Act 1973 (Cth)
-
National Health Act 1953 (Cth)
-
Census and Statistics Act 1905 (Cth)
-
National Disability Insurance Scheme Act 2013 (Cth)
-
Social Security Administration Act 1999 (Cth)
-
A New Tax System (Family Assistance) Administration Act 1999 (Cth)
-
Paid Parental Leave Act 2010 (Cth)
-
Australian Immunisation Register Act 2015 (Cth)
-
Student Assistance Act 1973 (Cth)
Privacy obligations
Not applicable.
Outputs
Australian Deaths Module
The Australian Deaths Module can be combined with other data modules as required for a research project and will consist of:
• De-identified Australian deaths content data
• Deaths Linkage Map which describes how the National Linkage Spine and the Deaths datasets are connected.
• De-identified Australian deaths content data
• Deaths Linkage Map which describes how the National Linkage Spine and the Deaths datasets are connected.
Medicare Benefits Schedule Module
The Medicare Benefits Schedule Module will be created from the ADSP-enhanced data and will consist of:
• De-identified Medicare Benefits Schedule content data
• The Medicare Benefits Schedule Linkage Map, which describes how the National Linkage Spine and the Medicare Benefits Schedule are connected.
• De-identified Medicare Benefits Schedule content data
• The Medicare Benefits Schedule Linkage Map, which describes how the National Linkage Spine and the Medicare Benefits Schedule are connected.
Pharmaceutical Benefits Scheme module
The Pharmaceutical Benefits Scheme Module will consist of:
• De-identified Pharmaceutical Benefits Scheme content data
• The Pharmaceutical Benefits Scheme Linkage Map, which describes how the National Linkage Spine and the Pharmaceutical Benefits Scheme datasets are connected.
• De-identified Pharmaceutical Benefits Scheme content data
• The Pharmaceutical Benefits Scheme Linkage Map, which describes how the National Linkage Spine and the Pharmaceutical Benefits Scheme datasets are connected.
National Disability Insurance Scheme Module
The National Disability Insurance Scheme Module will consist of:
• De-identified National Disability Insurance Scheme content data
• National Disability Insurance Scheme Linkage Map, which describes how the National Linkage Spine and the National Disability Insurance Scheme datasets are connected.
• De-identified National Disability Insurance Scheme content data
• National Disability Insurance Scheme Linkage Map, which describes how the National Linkage Spine and the National Disability Insurance Scheme datasets are connected.
Data Over Multiple Individual Occurrences (DOMINO) Module
The Data Over Multiple Individual Occurrences Module will consist of:
• De-identified Data Over Multiple Individual Occurrences content data
• Data Over Multiple Individual Occurrences Linkage Map, which describes how the National Linkage Spine and the Data Over Multiple Individual Occurrences datasets are connected.
• De-identified Data Over Multiple Individual Occurrences content data
• Data Over Multiple Individual Occurrences Linkage Map, which describes how the National Linkage Spine and the Data Over Multiple Individual Occurrences datasets are connected.
Medicare Consumer Directory Module
The Medicare Consumer Directory Module will consist of:
• De-identified Medicare Consumer Directory content data
• Medicare Consumer Directory Linkage Map, which describes how the National Linkage Spine and the Medicare Consumer Directory datasets are connected.
• De-identified Medicare Consumer Directory content data
• Medicare Consumer Directory Linkage Map, which describes how the National Linkage Spine and the Medicare Consumer Directory datasets are connected.
Core Disability Indicators
Core Disability Indicators, comprise de-identified information that support a consistent approach to disability measurement in the NDDA. The indicators capture and describe different disability concepts in the data.
Survey of Disability Ageing and Carers
The Survey of Disability Ageing and Carers will inform key National Disability Data Asset priority areas including:
• Health outcomes for people with disability; and
• Reporting under Australia's Disability Strategy Outcomes Framework.
• Health outcomes for people with disability; and
• Reporting under Australia's Disability Strategy Outcomes Framework.
Additional information
Variation 002 registered on 9 October 2024.
Details varied affect the following sections:
- Description of shared data updated - addition of Survey of Disability, Ageing and Carers (SDAC) data.
- Description of output updated - addition of SDAC Module
Variation 001 registered on 13 September 2024.
Details varied affect the following sections:
- Description of shared data updated.
- Legislation overridden updated.
- Description of output updated.
